lice (Italian League Against Epilepsy) presented a Decalogue with the fight against stigma and stigma at the center discrimination on epilepsy. A way to improve the lives of patients with this disease and reduce the impact of the disease. A meeting about prevention and therapy trajectories.
The meeting “Epilepsy, Stigma and Knowledge” took place in the Senate, with a focus on adequate support for patients with epilepsy and access to treatment. A path of therapy suitable for those who are controlled by drugs and especially for those who have some form of drug-resistant epilepsy. Another essential theme is the research in the field of epilepsy and the inclusion of this pathology in chronic diseases at the Ministry of Health.
The meeting also involved the Italian Society of Neurology (Sin), the Patient Associations and IBE (International Office of Epilepsy). Luizen made the request for a National Observatory permanent for epilepsy and their families. In addition, he also requested a technical table with clinical experts and beyond, the pharmaceutical industry and regulatory authorities.
A third of people with epilepsy are not sensitive to drug treatment, which accounts for the majority of health care and health care expenditures. If the seizures return despite drug treatment, people with epilepsy can no longer be autonomous. Families are on their own when faced with a devastating disease that causes unpredictable and dangerous episodes. In addition to the pharmacological burden that affects cognitive and physical development, drug-resistant epilepsy does not allow a satisfying social, school, and work life. Scientific research needs to be done to find new, more targeted and appropriate treatments for all types of patients. Surgery, which is successful in 70% of cases, needs to be expanded given the current presence of few centers in Italy and a low number of patients that can be treated. Palliative therapies (ketogenic diet, vagus nerve stimulation) should be available to those unable to undergo traditional surgery.
dr. Laura Tassi, President of the Lice
Source: Lega Nerd
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